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- YOU ARE NOT ALONE. ASK FOR HELP. This may be new to you-but countless
others (over 50 million in this country alone) are caregivers. Many have been successfully coping for
as long as families have existed. The
trick is to find those who do it well and be open to what they have to
teach.
- BE AN INFORMED CONSUMER. Whatever the cause of your loved one’s
frailty, research and learn all you can about it and available services.
Take advantage of discharge planning and home care services. Talk to
professionals in the field, and let them guide you, but also use the
Internet, and libraries to help yourself understand as much as possible.
- WRITE IT DOWN. Buy a small sturdy notepad or address
book to log in names, dates and information. Always keep it with you because you
never know when you will need to refer back for clarification or reach out
to a contact person.
- BRAIN OVERLOAD. Recognize that your abilities to
concentrate, organize & delegate will be tested, and eventually
strengthened as you decide to move forward.
- BE ASSERTIVE, NOT AGGRESSIVE. Learn how to effectively communicate
with the professionals providing care for your loved one. Learn their names, keep notes so that
you can ask direct questions, and note the answers.
- DO NOT ASSUME THAT DIRECTIONS ARE
FOLLOWED.
We are all human. Reviewing
any change in your loved ones care plan and or medications is
essential. Make yourself available
for care plan meetings-you will help the professionals understand your
family dynamics, and you will learn of changes and recommendations. Follow through with
all involved. Have the changes been implemented? Are those changes are
having a positive effect for your loved one?
- DESIGNATE ONE FAMILY MEMBER TO BE THE
PATIENT’S ADVOCATE. The professionals providing care will
need one person to communicate with.
All other family members need to support that person the best they
can. Use this opportunity to come
together; there is no time or energy for negative behavior, whatever your
differences-put them aside.
- PRACTICE LISTENING. It’s harder than you think, but by
learning to listen you can shut off the chatter within you and open
yourself to truly engage in what others have to offer. (See exercise on reverse)
- PROMOTE INDEPENDENCE WITHIN PROPER CONTEXT. We all need to feel that we are in
control of our lives. Imagine an
event that would render you incapacitated to some degree. How would you feel if your advocate made
your feelings and desires less significant than their own? Of course, proper context is the
key. But always consider how you
would feel in that person’s place.
- MAINTAIN AN INDIVIDUAL’S DIGNITY. Do not project your feelings, wishes or
intentions to your loved one.
Presumably they have expressed their wishes previously; hopefully
all legal documents are in order.
Deal in fact, do your best to not make very important decisions
when overwhelmed with emotion.
Above all pray for grace, and nourish your sense of humor.
How well do you listen? Concentration is a skill worth
practicing. How often do you forget what
you were saying, or more importantly forget or really not hear what someone
else just said to you?
Do you suffer from Multi-Tasking Brain
Syndrome? Oddly enough there is not
really a condition with this title, but there should be.
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Its main symptoms would be: An inability to listen effectively and/or
diminished concentration leading to an increased level feeling out of control
as well as overwhelmed.
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The mental and physical
manifestations would be: Forgetfulness, irritability, and an entire list of
health issues ranging from acid reflux to chest pain. May lead to nervousness, and possible
withdrawal from a difficult situation.
Excessive multi-tasking can become an
annoyance that adds unnecessary stress to otherwise routine activities. For instance, have you ever gone to the
grocery store for a specific item and come out with several things and
forgotten that one item? I hate when
that happens!
Caregivers have good reasons to be distracted. We are the Multi-Tasking Champions! However, if we are not careful to center
ourselves, Multi-Tasking Brain Syndrome (MTBS) could begin to make our world
more difficult than it needs to be.
Is there a cure? No, not really, and you wouldn’t want to loose
the ability to multi-task, would you?
Here is one simple to use, non-invasive therapy that can help.
Learn how to shut off the world. Anywhere, any time you can take a mini-brain
vacation by closing your eyes and turning off the chatter within you. But it takes practice. Try this exercise.
- Choose a quiet place. Set a
timer for 60 seconds. Then sit
comfortably, close your eyes, begin to relax, and think. That’s right! Think about the day, all
that you need to do, traffic, the office, whatever. It shouldn’t be hard, because this is
what we do all day long. It is not
very relaxing, is it?
- Now try this. Immediately
reset the timer for 60 seconds. Get
comfortable and this time simply listen.
It is not as easy as it sounds, but the benefits are well worth the
effort. You may need to start with
a smaller time increment and increase it gradually, just as with any
exercise.
Learning
the art of listening can enable you to not only increase your ability to focus
in your daily activities, but will allow you to become a more effective
listener when placed in a stressful situation. I love when that happens!
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